Happy “65” Roses Day!
Hi! Here is a bouquet of roses to say thank you for your support. I wish I could give you real ones, but this will have to do. Every phone call, text message, email and everything in person has meant so much to our family over the last seven years. It’s what keeps us going, and means more than you know. 🌹
Parents started this mission in 1965 when Mary G. Weiss, a mother of three boys with Cystic Fibrosis (CF) started making phone calls to raise funds for the Cystic Fibrosis Foundation (CFF) in hopes that it would help her boys. Others joined her fight for a cure for their loved ones with CF so they would have a better life. That fight still continues today.
We have had some advancements but we have not yet won. Unfortunately, not everyone has benefited from these new treatments due to their particular genetic mutation. And we have to do a better job of taking care of people with CF in countries where they don’t have access to things like we do in the United States. It’s just not fair.
I am hopeful of my son’s future but know we still have a long way to go. Hence me jumping in and starting a blog with no previous knowledge of what I was doing except a passion and fire lit from within to want more for my son. I couldn’t be quiet anymore and had to tell our stories. So I started writing & I’m winging the rest as I go. :) I will not back down until a cure has been found. That is the end goal. My son deserves it. Everyone with CF does.
My request to you on 65 Roses Day is when you see a rose or flower today, pick it (ask permission if it’s in someone else’s garden) and give it to someone you care about. If they don’t live near you, take a picture of it and send it digitally the way I am to you. Call that person or give them a big hug if you’re nearby and tell them how much you care. My favorite bouquets are the ones my boys pick for me of wildflowers when we’re out in nature.
None of us know how long we have on this earth so let’s make every moment count with those that we love. Smile, send the note, make the call, give the hug. Life is not always easy, but we can love on the people around us.
As I write this, I’m watching my husband set up our families stuff on the beach for the day. I’m eternally grateful for him and for the love that he shows me even when I’m not being nice. I couldn’t do this crazy life without him. I’m gonna go tackle him on the beach and give him a big hug. And hope he knows how much I care. 💙
Cheers, Katie
Go to https://www.cff.org/about-us/65-roses-story to read the full “65 Roses” story.